Service Feedback

Please let us know your thoughts regarding the current Norfolk and Suffolk ME and CFS service whether you have used the service or not.  If you wish you can make comments anonymously and your comments can be taken to the next meeting with NHS Commissioners and the Service Provider.

Another route for comments regarding the service is via Suffolk Healthwatch and Norfolk Healthwatch. Again comments can be made anonymously.

You can also email us directly with comments. 

ME Support Norfolk

Or you can contact ME Support Norfolk who will also pass on your comments, anonymously if you wish. You do not need to live in Norfolk to be a member.   ME Support Norfolk produces regular newsletters and holds regular support group meetings.

Total Voice - Suffolk

Total Voice provides free, independent and confidential advocacy services in Suffolk.

Advocacy and self advocacy can be vital for people who can not speak up for themselves, or people who feel that they do not have the power to do so.Our multi-skilled advocates carry out all elements of statutory (IMCA, IMHA, Care Act and NHS Complaints) and professional advocacy to individuals over the age of 18, who may have mental health issues, learning disabilities, dementia, family carers, acquired brain injury or other disability impacting on their self advocacy

The team at Total Voice Suffolk can be contacted on 01473 857631 every weekday 9am to 5pm and you can email us at

East Coast Community Health

East Coast Community Health (who provide the Norfolk and Suffolk ME and CFS Service) have confirmed that negative comments or complaints made anonymously will NOT be acted upon.  In addition every year the Service surveys a small number of patients to ask for their views. If you respond to the survey and make anonymous negative comments or complain, again these comments will not be acted upon.  East Coast Community Health take the view that to investigate a complaint or negative comments they need to have a dialogue with the complainant.

Anonymous positive comments are taken by the service as evidence that the service is performing well.

Our service user group understands that there are many very valid reasons for a patient wishing to remain anonymous when giving feedback regarding the service.  Anonymous comments which repeatedly raise the same or similar issues can be very useful in driving forward improvements in service delivery.

The new service specification provides for a process whereby an independent agency (e.g. Healthwatch) can provide an independent annual assessment of service user satisfaction levels including anonymous comments.  We hope to put this process in place shortly.

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