Meeting of the Joint Health Overview and Scrutiny Committee (HOSC) 4 April 2017 - Meeting Documents


The meeting documents have now been published on the Norfolk County Council website.

This is a very long document and also contains issues that the Joint Committee are considering other than the ME & CFS Service.

A list is below of the individual documents relating to the ME & CFS Service.

01Public Participation Session - At the January 2017 Joint HOSC meeting, with the permission of the Chairman, Barbara Robinson, a member of the Patient / Carer Group spoke about the ME & CFS Service.

02. Update on the ME & CFS Service by Gt Yarmouth & Waveney CCG at the January 2017 Joint HOSC meeting

03. Suggested Approach from the Joint HOSC regarding the ME & CFS Service - March 2017

04. Timeline of submissions to the Joint HOSC regarding the ME & CFS Service between 2008 and 2017

05. Briefing from Gt Yarmouth & Waveney CCG - March 2017

06. Feasibility Assessment of Implementation of a Consultant Led ME & CFS Service in Norfolk & Suffolk - November 2016


08. Patient Change Audit - January 2016

09. Children's Survey - December 2013

10. Briefing from ECCH - Provider of the ME & CFS Service - March 2017

11. Complaints about the ME & CFS Service 2014 -2017

12. ECCH Patient Survey January 2014

13. Report of Patient Experience from the Patient / Carer Group - March 2017

14. All the Meeting Papers for the 4 April 2017 Joint HOSC

A representative from the Patient / Carer Group will be attending the meeting.  A presentation will be given at the discretion of the Chair of the Joint Committee.

Suffolk Commissioning are leading the service development process and will also be attending the meeting.


The NHS asking for interest from Providers to deliver a Consultant led service in Norfolk and Suffolk


Yesterday, Suffolk Commissioning issued a 'Prior Information Notice' on behalf of the 7 CCG's who commission (or buy) the ME and CFS Service from Provider(s).

The CCGs are interested in transforming this into a consultant led model consistent with the current international consensus evidence base for ME and CFS.
The aim of the service will be to improve outcomes (particularly for those with severe ME), increase ongoing support and provide a more holistic multi-disciplinary team approach to care. The total annual budget for the community element is anticipated to be in the region of 500,000 GBP.
This Prior Information Notice does not guarantee anything, but rather it is 'dipping a toe in the water' to see if there are any Providers willing to deliver the service for the funding available.  

The Prior Information Notice will run for a month.

Meeting of the Joint Health Overview and Scrutiny Committee (HOSC) 4 April 2017


The role of the Joint HOSC is to hold local services to account.  A briefing for the Joint HOSC was provided by the NHS for the meeting in January 2017. 

The Joint HOSC have reviewed representations made by the NHS in response to the complaints that have been made by the Patient / Carer Group.  

We have repeatedly complained about the serious shortcomings in care and the failure to deliver on promises for improvement accepted by the NHS and made on the recommendation of the Joint HOSC in 2009.

Meeting of NHS Commissioners on 13th March 2017


Commissioners from all of the 7 CCG's who commission the Norfolk and Suffolk ME and CFS Service are meeting on 13th March.  They will be discussing the way forward following last years feasibility study for service change.  This is a very important meeting for our local service.

This post will be updated when we know the outcome of the meeting. 

Update
Commissioners have assured us that they remain committed to delivering a biomedical consultant led service in Norfolk and Suffolk.  Options are being explored to achieve this within the finances available.