ME/CFS Service Development Meeting 12/10/11

Summary of points raised
  • Needs assessment
    • the numbers of patients that it is anticipated would use the service needs to be revised as it is lower than the current level of service use
    •  language needs to be more specific around the needs of the severely and very severely affected, prescribing, children and young people and training and improved information
  • Current Clinic
    • Further information requested from the PCT as information requested not received
    • Norfolk NHS is the lead contractor and will push forward with the service specification
    • Support given by the current service for benefits claims is valued
    • Co-production of the new service is vital
    • Funding for clinic in Stowmarket approved
  • LINk
    • Norfolk LINk can help with admin (meeting minutes and agenda) but do not have the resources to continue to support the group any further
    • Suffolk LINk to be contacted
    • Queries regarding the ME/CFS Service now to be sent to Norfolk NHS